Monday, March 30, 2009
Chronic stage 3 Lyme Disease - Day 5
Friday, March 27, 2009
Things to look into for alternatives Lymes disease Treatment
CoQ10 are required though (1,200 milligrams daily)
Eating whole broad beans
Ayurvedic medicine
Acupuncture
Please send me your ideas
Normally - Lyme Disease Day 3
This is what Lymes Disease Looked like for me.
In January of 2004 I started experiencing these symptoms and each year it gets progressively worse:
2005 – Heart Arrhythmia. Sporadic occurrences that would last for a week or more for about a year and then went away. Mitra valve prolapse ongoing.
Before 2006 - April through October: For most of the year April through October I am in reasonably good health and have good flexibility and mobility. I am a black belt in Tae Kwon Do.
Since 2006: This window of good health becomes marked by chronic joint pain and muscle pain that last year round. Manage through exercise.
Mental Illness: Start taking Respirodal for return of Autism Sensory Disorder symptoms that I thought I had out grown. Had lactation side effect and was switched to Seroquel. I was diagnosed with high functioning autism at 14. Occasional Klonopin prescription for panic attacks.
2009: Stop Tae Kwon Do because I cannot manage the joint pain. But only practice Tai Chi now. I work out 2 to 3 times a week’s lift and walking. Developing athlete’s asthma and unusual sporadic occurrences of fatigue. Cutting back on work out.
The Zebra:
December: Starting each December movement become difficult as if I am walking against some mysterious resistance. My speech becomes different my words seem very measured and slow to come out.
I have a reoccurrence of herpes infection inside the nose that also causes swelling in my ears and eyes. The herpes infection flares up very badly during these months and I treat it aggressively with Famvir.
Asthma flares up.
By January sever spinal stiffness sets in and I have balance problems. My husband will sometime say I am expressionless during this time even though I feel very happy.
By February I am painfully stiff. Unwarranted fatigue sets in. Then
I get mysteriously sick with sever pain and fever.
Fever, Chills, Terrible Pain covering the entire body, Nausea, Inability to eat.
I almost lost my job this last bout with it because I missed so much work. I was literally in bed racked with unyielding pain that covered my entire body for 5 days followed by an additional 5 days to recover. 10 days all total missed from work
I have been thru labor and birth - I know what sever pain is and this was horrible pain. Darvocet could not touch it.
Each February prednisone is the one thing that has “knocks back” the ‘illness’ enough so that I could get back to life. Additionally antibiotics are prescribed for ENT infection that occur as a secondary infection during this time
Yearly weight loss and muscle mass loss: I work very hard to weigh 135 pounds by October each year and lifting weights regularly because I know each February when this strange illness strikes me I will lose 20 to 25 pound. My stomach just stops processing food. Liquids only. I am usually benching 50 pounds in October but by the time I recover from my illness in February I have to start all over with 5 pound free weights. And even that is hard - same with legs and other body parts.
Most Recent Changes since January 2008
Left hand and left leg tremors. At rest and in movement. They are unexpected and disruptive. They can last a few minutes or days. Constantly dropping small object such as pills or utensil to the point that it has become humorous in my family. Its like things just fly out of my hand.
I have developed a subtle foot drag with my left foot. It’s like I just trip over nothing. It’s kind of become a joke at the office. I loose the ability to type well “fat fingering all the keys.”
I am having “senior moments”. Not simple like something is on the tip of my tongue and I just cant quiet remember it. No like I can’t remember – anything at all. Then really weird memory stuff: I don’t just forget where I parked I forget what kind of car I have. I sit down at my desk and I can’t remember what I do. I look at my husband and I can’t remember his name. I remember that he is my husband though J
Urinating: When I urinate I will seem to empty my bladder and my stream of urine will stop and then start again and I will urinate quiet a lot more. Symptoms of urinary tract infection but I test negative for it.
I am on day 3 of my antibiotics - no change yet.
Thursday, March 26, 2009
It's Lyme Disease! Crap...
My Crazy Brother In Law
One brother is level headed and normal acting. He is gentlemanly but you cant ever really make friends with him. He is some what emotionally removed. He has trouble being honest about who he is. All three brothers where abused by their father and allowed to endure it by their mother. This brother is determined never to let anyone know the truth. He has a story he has made up about his life that he tells everyone even his wife. Its a little spooky like your just waiting for him to crack up. But of the two brothers he is the "nice one".
My husband is not nice. No don't get me wrong he isn't mean either. You just wouldn't use the word nice to describe him. Honest, earnest, forthright, loving, endearing all these fit better. But he seem to be cut from an entirely different cloth than his two brothers. Sensitive artist type.
Now the oldest brother is just nuts and mean is not a bad word to describe him. Totally unpredictable fits. I went down to their mothers house to help my husband identify things that he wants. He called up cursing my husband because I touched his mother things. My husband and I are a team and we do everything together. So we just think he is just crazy. He is obsessed with this whole blood is thicker than water thing. Wives don't count as blood. Only blood can touch his mom stuff. He would have married his own sister if he had one just to "keep the blood line pure". He is a card caring member of the Klan. He is the kind of guy you always wonder if you need to get a restraining order for. He owns more guns than the Cary Police Department. He has a cabin in the woods in case of anarchy.
And guess what he wants my husband to ride the six hours down to Wilmington with him.
Boundaries?
Wednesday, March 25, 2009
Emma Anderson Chapel - Topsail Isalnd Sunrise service - Topsail Easter Service
Maundy Thursday Service at 6:00 p.m.
Friday Chapel open from 12:00 noon to 3:00 p.m. for prayer and meditation
Saturday Egg Hunt at 11:00 a.m.
Sunday Sunrise Service on the beach at 6:30 a.m.; 8:00 a.m.; and 10:00 a.m (updated 3/37/09 4:40 pm)
Worship Service with communion.11:00 a.m.
Worship Service without communion
Sunday School at regular time.
Inofrmation for Sunrise Services Topsail Island Easter 2009 - topsail easter service
It's Lyme Disease! Yeah!
So we did the blood test and BAM - I have Lyme Disease. I have had for about 5 years. It is the reason for all this crazy shaking, muscle pain and joint rigidity and it causes the relapse I have every winter. All I have to do is take Doxycycline HYC for 21 days. I'll be as good as new. Praise God!
Can you get me an invitation to the biglifeinthelittlewoods blogspot.com?
Tuesday, March 24, 2009
Tremors
Monday, March 23, 2009
Crazy Weekend with The Estate
So my husband and his brothers are dividing their mothers estate. There is no fight over anything yet. Just a terribly painful process of trying to figure out what to do with all the things she valued and saved. She saved everything. Her greatest fear was to "do without". Having gone through long periods in my life where I had to do without I can understand this fear. But I have also learned that it is unavoidable. You will do with out. Especially if you are a Christian there are times in your life where you will be called to do with out. My mother in law inherited this fear from her mother who was raising 2 girls in the Great Depression. "How will I feed my children" is a terrible reality that many southerns lived through. Children watched in silence as their parent worried and clipped coupons. They where little and didn't have the filter to understand it really and develop a sort of undefinable sense that the 4 horse men of the Apocalypse might be better then 'not having enough'. She constantly feared people stealing from her. She built a high fence around her house so no one could see what she had inside. When she was in the hospital her sister who is of a like mind said to me - go to her house and pick her tomatoes or the neighbors will steal them. It made me laugh inside. The neighbors would have been doing me a favor if they had stolen them. It would have saved me from fighting with the yellow jackets over the rotten tomatoes that covered her yard.
So now boxes and boxes of stuff are lined up for the yard sale. Stuff people will pay .50 cents or 1.00 for at the most. Nic-nacs from hell. Excessive collection of dishes with matching table cloths what not. None of them have been stylish in the last 20 years.
So every now and then my husband is gripped by a fear that his brothers will try to take his share of this stuff. At least one of them is prone to that sort of thing. We pray that God will help us full understand this bible verse:
Matthew 6:19[ Treasures in Heaven ] "Do not store up for yourselves treasures on earth, where moth and rust destroy, and where thieves break in and steal.Matthew 6:18-20 (in Context) Matthew 6 (Whole Chapter) Matthew 6:20But store up for yourselves treasures in heaven, where moth and rust do not destroy, and where thieves do not break in and steal.Matthew 6:19-21 (in Context) Matthew 6 (Whole Chapter)
We think of it like this. The real treasure was my mother in law. That bird has cracked out its shell and flown to heaven. What we are left with are just egg shells. We want to keep them because they remind us of her. But they aren't her and they wont bring her back. They are just egg shells not worth fighting over.
Do you believe you can create your own Joy?
Wednesday, March 18, 2009
Prince Charming
The prince was...
1. Youthful in his outlook on life
2. He had his own interests and was sure he was not willing to give those interests up just to be married.
3. He was very discerning. He was look for just the right girl. Not a Hollywood plastic surgery trust fund disaster.
4. He was looking for a women with strength. Beautiful in a hardworking sort of way and one who could with stand adversity.
5. He was very sure of his choice when he found Cinderella
6. He went through an a exhaustive search to find her just to ask her to marry him because he wasn't going to "settle".
7. He dispensed justice to people who had harmed his wife and he stood up for her – even to his family.
Ok Hugh - you can be my Prince Charming
Layoffs - The Good News
But I have gotten good at the layoff thing. So here is my advice to you. Many of you out their are getting laid off for the first time in your life and it seem like the world just ended. Possibly you worked for your company most of your life.
MOST IMPORTANT POINT: Look it is going to be tolerable. It is actually going to be OK but it wont feel that way at first. Tolerable is better word. Step 1: Apply for you unemployment benefits. Step 2: But immediately get a part time job that somewhat resembles your field even if it hurts your unemployment check. Employers hire people who are working before they hire people who are not working - its a fact.
If your older and your kids are almost grown and you have savings go ahead a do that thing you always dreamed of doing. Dream big. But not for the rest of you. Prudence, measured level headed thinking is needed right now.
Step 3: However for the rest of us. TRAIN! By hook or crook find the cheapest training possible for a job that is currently in HIGH, HIGH demand in your local area. Never stop training until you get a job. Don't ever do a job you hate but then don't be to picky either - your unemployed remembered. When the economy picks up start trying to find something you like a little better.
SECOND MOST IMPORTANT POINT NUMBER 2: This will not last forever. It seems like it might sometimes. You'll ride this wave for about 1 year. You will be ok.
Oh please don't do dumb stuff like marry a rich guy you don't love, deal drugs, adopt a foster child or some other Jerry Springer crap.
Lastly if there are no jobs in your area that are in HIGH demand. - MOVE!!!!! Not ever city in America is broke. Rent the house you own or fire sell and - move on. Fresh start. Don't be afraid. After the economy recovers you can always move back and live near mom again. But until then go some where else make money and send mom some every week.
I've gone through this several times. I have a naturally unstable career. I used to get ulcers over even the prospect of layoffs.
Don't loose a wink of sleep over it. I am loving you through it. You are going to be fine you just need to take deep breaths and be practical.
Tuesday, March 17, 2009
Sexually Rude Humor
Monday, March 16, 2009
tell your lover that you love them – forever and a day
When my husband broke his back and was disabled I was furious. This happened 3 weeks after our first child was born. I had developed levator syndrome from a prolonged labor and my body was a train wreck. I was told it would be 10 years before my body would heal to the point I could lift a 2 gallon jug of milk. I was pissed. I did my physical therapy and all sorts of alternative medicines and it was about 2 years before I could carry a 2 gallon jug of milk with no pain. But to no avail I was a high energy woman who felt ground to a miserable stand still. But still I got better faster than my husband who disability is permanent. Slowly I started doing things, hiking, kayaking and snowboarding. I didn’t notice my husband wasn’t keeping up. Without realizing I left him on an island alone in his disability. We would go on vacation at the beach and I would take the kids all over the island and we really lived it up. Hugh stayed on the beach towel or in the room doing some light summer reading. I thought we where all doing what we liked best. Until in 2003 I was hit head on in car crash. The force impact was so hard my car was facing in the opposite direction in the exact spot and lane I was driving in. Spun my car completely around. I was broken physically. So the next vacation the kids stayed with my parents and Hugh and I took it slow and easy to Key West. I realized on that trip I had left my husband behind all those years. Light swimming, lots of sitting holding hands and small walks. A world of lost romance was reborn. The car crash was a blessing it gave me back my marriage that was heading for cliff with out my even knowing it. God in his love and wisdom honored our covenant.
So I tell my Hugh I love him today and I let God take care of the forever and a day part.
Vintage 21 Sermon from 3/15/09 - Pastor Tyler on Suffering
The bible promises us that salvation will bring suffering. Yes it is true despite the ‘health and wealth’ voodoo that is being preached these days. The bible promises us that if we become believers that we will suffer and we do it so that others will see Jesus. We may suffer financially, emotionally, physically you name it.
But here are some recent reflections of my own on the beauty that Pastor Tyler (Vintage 21 Church in Raleigh) talked about …
Recently I was very ill. I was so sick I considered admission to the hospital multiple times. I was flat on my back for 5 days and then there was another 5 day of recover after that that has lingered on an addition 5 days more. Racked with unfathomable pain I was truly unable to move. Infections spread around my body and eventually my body started attacking itself. Thanks to heavy rounds of steroids I am slowly coming back. My GP kept reassuring me that they would do little but make me sicker at the hospital. In truth after helping my mother in law die in the hospital. I had to agree. I am on the other side of my illness now. What made it hard was my illness followed on the heals of my husbands and his was equally as bad as mine. You know what that means – no sex. The glue of love- missing. When my husband was deep in his sickness he was hard to reach – alone on island in all I could do was comfort him a little and of course that is all he could do for me when I fell ill. Reaching across and dark abyss to try and care for one another. Well hooray for last night. We are both felling better and had a fun time. We both lay awake afterward talking about how jarring it was to come back from such a long abstinence. But we also agreed that our faith was strong in the Lord. We both agreed it was our insistence on loving each even when we where ill - that our suffering had in a mysterious way shown us Jesus heart for us. Made our marriage stronger.
As my mother in law suffered through the 6 months after her stroke before she died. I reassured her and comforted her many times. Little I had to offer helped but one thing. I would say, “Cecyle you are suffering terribly but the Lord is using your suffering to turn your children to Jesus”. Only this brought her comfort and gave her the will to go on. Two of her sons where not believers. They rarely prayed or went to Church and found Church just to be a social mechanism for fitting into polite society. There was no meaning. But while watching there mother die they reached for answers. They read the bible to her. They prayed by her bed. The cried to the Lord and their hearts where broken for him. No they are not dyed in the wool born again Southern Christians but they are reaching for the hand of their father and all because of her suffering. When she finally died they offered their prayer to a God who had become and comfort and a Father.
My son is unique, not only is he autistic but he has a unique capacity for love and justice. No I don’t mean he is sweet. He is not sweet we have all sort of behavioral issues. When I say he has the unique capacity for love. I mean he cares deeply for the hearts and welfare of others. He is willing to stand in the gap to easy anyones pain. He is a fist of furry to set things right when other kids are picked on. Sure he has trouble with his own anger but his heart is like nothing I have every encountered. At 9 years old he weeps sometimes that he could just die. Leave this world of horrible words that hurt and terrible frustration and isolation of autism behind him. He is so deeply compassionate. Like the scence from Superman returns where he floats in outerspace listening for the crys of help from the people of the earth. He will be the kind of friend who is playing chess in the park when he is 80 with a man he has known since grades school. Teaching him that he has a heart with a capacity for love that is most uncommon, almost unheard of these - has been a journey. The hardest part has been teaching him that with great love will come great heart break. The ones you love will die and some will move away. But when people see how deeply he grieves his losses they also see how deeply he loves. They see Jesus in his suffering.
This Sunday they baptized people. I cried it was so beautiful. Years ago I had a near death experience and God allowed me a small glimpse of his judgment. Just that peek alone blew my mind. His capacity for wrath and judgment, tempered by unfathomable righteousness, grace and a love without end. It was like a fire that burned over me and through me. It was as if I was turned to ash and created again just so he could show me awesomeness of his power. I don’t feel the need to be baptized again. I have an amazing view of my own salvation. A vista unequaled.
If you prefer to hear a training minister talk on the subject you can always listen to the pod casts of the sermons at vintage 21 .com. I have an associates degree in theology from Louisburg College that I obtained almost 21 years ago. So while some of my think is solid when it comes to personal experience it is also at times a bit dusty when it comes to theology.
Thursday, March 12, 2009
Snow in Cary NC
It was 80 degrees this week but last Monday was a snow day. Something happened after I had my first child. A depression set in that was hard to describe. I was not an unhappy person. In fact I felt like I had won the lottery when I had my children. The years that followed have been the most wonderful time of my life. Oddly I lost the thrill I used to get from the change of the season or night to day. There was a certain grueling aspect to getting a baby through their first years that many moms can relate to. The simple little things that used to bring a sparks of joy vanished. Just recently I noticed they are coming back. The first time I noticed the change was when it snowed recently. In the past when snow was pending here in
Enjoy the snow videos: Sorry about the chasing Big Foot quality to some of them
Snow in Cary NC Video 1 - Hemlock Bluffs State Park - this where I got married
Snow in Cary NC Video 2 - Hemlock Bluffs State Park
Snow in Cary NC Video 3 - Hemlock Bluffs State Park
Snow in Cary NC Video 4- Hemlock Bluffs State Park
Snow in Cary NC Video 5- Hemlock Bluffs State Park
Snow in Cary NC Video 6- Hemlock Bluffs State Park